The study consortium processes and records information about the study participants according to the General Data Protection Regulation
applied acts and articles
As data controllers under the General Data Protection Regulation, consortium partners are obliged to inform all data subjects about their rights in respect of processing of their data.
Personal data is registered in accordance with Article 6 of the General Data Protection Regulation. Sensitive data, i.e. data on health or data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs or trade union membership, and data concerning a person’s sexual relations and sexual orientation is registered in accordance with Article 9 of the said Regulation. Processing of sensitive data in research projects is covered by Section 10 of the Act on Data Protection. According to this Act, the consortium partners may only process sensitive personal data if the processing is aimed at statistical or scientific studies with potential public interest and if the processing is necessary to conduct the studies.
Processing and storage
The Consortium processes personal data confidentially. Personal data will be processed and stored in the Universities secure filing systems. When the data is no longer necessary for the purpose for which it was collected, it is deleted or filed in the Universities records.
Disclosure of information
Information will not be disclosed to anyone without the data subject being informed unless the Consortium is obliged to disclose the information to other public authorities. Research data will only be disclosed for statistical or scientific purposes.
Study participants may contact Consortium partners at any time to obtain copies of the information stored in the Universities records or filing systems.
The Consortium is not obliged to hand over copies of information from research projects.
Correction of information
If study participants believe that incorrect information has been stored, they may ask the Consortium to correct the information. The information will be corrected accordingly or it will be noted in the files that the person concerned has asked for a correction.
Study participants are entitled to the information being ignored until it is decided which information is correct. Study participants are also entitled to request that the Consortium does not use the information if it is no longer needed.
Participants in research projects are not entitled to correction of research data.
Withdrawal and erasure
If the Consortium has obtained the consent of a data subject to process information, study participants may at any time withdraw the consent. If the consent is withdrawn, the Consortium may not continue to process information after the consent has been withdrawn. The study participants have the right to erasure of information recorded by the Consortium provided the information is no longer necessary for the purpose for which it was collected. The information must be erased also when the data subject withdraws the consent or in case the information has been processed unlawfully by mistake. The data subject has, however, no right to erasure of information that has been filed in the Universities archives in accordance with the Archives Act. Information in a research project may not be erased if this is likely to mean that it will be impossible or gravely impede the conclusion of the research project.